David, In less than 24 hours, you will be coming home. You will have completed yet another stay in a care facility. As much as the facility would have us believe differently, there is no cure for your condition. I explained it once to you, maybe you remember? I also told you there is no cure for the condition you were born with. You have something called Fetal Alcohol Syndrome. It is within a group of disorder known as Fetal Alcohol Spectrum Disorders. Like Autism, there are wide variations in the symptoms that people with this condition have. This is why we see so many specialists. Why do you have this? When your birth mom was pregnant with you, she did a lot of things that were not healthy for you, these included using drugs and alcohol. As much as I want to say that she is evil, I can’t.
“About that quilt.” I know, the title is rather cryptic. It is not at all descriptive. And that’s okay. Last Spring, I wrote about the unfinished quilt. Remember? I wrote about how in a situation like ours, we were constantly removing pieces of the quilt and trying different things in their place. Since we moved last summer, we have made incredible changes. Our family dynamic has changed. We owe this simply to the move into the city from our small community. Jobs changed. Stress levels are reduced. We now have four kids in college. So what is different? Simply put – Everything. This time when David is discharged, he will be coming home to a new house he has never lived in. He will be starting a new school. He will have access to activities that weren’t available in our small town. He should have access to a greater range
that says “your son has had a seizure, and is on the the way to the emergency room via ambulance.” It was nearly two hours before I noticed the message on my cell phone, which tells me a number of things. They didn’t attempt all of the communications methods that we listed in the paperwork for his admission. They didn’t call both home and cell phone for dad. UPDATE they did leave a message on our home phone. They didn’t call both work and cell phone for mom. They didn’t call the third party emergency contact. They didn’t email me until after I had sent a message arranging for our Sunday visit. And by this time, it was more of an “Don’t know if you got my message or not, but David had a seizure today around 1:45…” In the end, preliminary indications are that he had an allergic reaction