Some thoughts on becoming Dad to my Dad. On him beginning to cede control of his life to me. Of having to “take” over when he is desperately trying to hold on. Mostly, just some thoughts about our time together as he gets closer to the end of his life.
Last week we didn’t get to see David because two of us were sick. This week, I am still not feeling well, but we went anyway. He was in a mood. Not sure why. He wanted to play basketball, and I couldn’t. He wanted to play badmiton, and I couldn’t. Part of it was because the other residents were in the gym. To me there is an expectation of privacy. I shouldn’t be part of their world directly because I am not staff. Just like they shouldn’t be part of mine. Regardless, unless staff tells me it is okay, I am not actively participating in activities with kids I don’t know. And even if I had the okay, not sure how comfortable I would be. So David was in a mood. Refused to eat. Didn’t want to cooperate. Asked every five minutes what time it was. He also talked about
David, for the most part, has a fantastic team working for the best care we can get him. Are there bumps in the road ahead? Yes. Have we surmounted mountains that first looked like bumps in the road before? Yes. At the head of our team we have someone called a Care Coordinator. This person, takes my calls whenever I call, including after hours, on weekends and when they are out of the office. Do we have some team members who aren’t worth their salt? Sadly, yes, in the past we have had those team members as well. What makes the care that we do get for David work successfully, or at least as successfully as we can get it to work, is that we work together to achieve the best care available out of the myriad of disjointed services that we have available to us. It has been a