Fighting for Answers | Tag Archives: LupusLupus Archives

follow-up doctor today

I had a follow-up appointment with my neurologist to get the results of my EEG that I had last week. They have the battery of questions regarding mental health, one of the questions was “Do you feel safe in your own home?”. My response, after a hesitation that got me a raised eyebrow… “no. No, I don’t.” The nurse asked me to explain, so I talked about David. The events, not just those of last evening, but for the last 8 months. So a notation was made about this. Any way. Back to the EEG results. The results are “normal”. No sign of a seizure disorder. The reason I am having some of the symptoms that I am having is the Neuropathy. It isn’t a diabetic neuropathy, the is related to my Systemic Lupus. So, the neuropathy is making itself known in my spine. Hard to define a long term

struggling and happy 3 month anniversary

This post isn’t so much about David as it is about me. See for a long time, David was in a safe place. A place where I didn’t have to worry as much. I could get the weekly reports, I could talk to David, I would take the interceding calls, that told me of some event in his life, and quarterly, i would make the 7 hour drive to see him. Now, he is home. And even periods of what should be periods of deep sleep are interrupted by concern over what he is doing. What he is into. Where he is. If he speaks, even if it is another room, chances are good I will hear it. This isn’t healthy. Yesterday, I told David to stay within sight of the back door. Mom came home and he wrangled the opportunity to go to the neighbor’s house. He stayed for

the degradation of a boy’s mental health

I post frequently about the things that David does, and the things that we deal with. You really need to know, I don’t post everything. It is sad to watch the gradual decline of a person’s mental health. His mental stability. For so long, everything was fairly smooth. It’s just in the last couple of weeks that things have really started to go downhill. With children, we have great hopes in their future. With David, we have great hopes for the future. Some days I dream that I am leaving a prison where I was visiting him. Having been to prisons to visit my step-brother, I know what the visiting areas are like, so it wasn’t like I was an inmate being released. My fear? My biggest fear is that one day, he will do something so drastic, so severe, that there will be no attempting to save him. I