Fighting for Answers | Tag Archives: FASDFASD Archives

Under new management for medication

I went to the pharmacy to pick up his medication and what do I find? nothing. So I said, “he is on an auto-fill plan how can this be?” It’s not logical The tech calls the pharmacist who explains it to me. “We call the doctor two weeks before the refill is due. “We call the doctor one week before the refill is due.” “We call the doctor three days before the refill is due.” “We call the doctor daily until the refill order arrives.” Now, normally, the pharmacist says, “we call once and it’s filled. We have been doing this with your son’s medications since March. This month we have received no response.” Moving out of state provided care I had already scheduled an appointment with his primary to get a psychological evaluation referral. So I asked her, can you refer us to a

the Outlook for a Special Needs Parent

The outlook for a special needs parent that fell in a hole. Seriously, this graphic, I didn’t make it – I found it on facebook, (if you created it or know who did, please comment and let me know so I can give them credit.) but anyway, this graphic says so much about what the Special Needs Parent goes thru for their child. In some cases daily, weekly, monthly and yearly. We see it many times for our David. And truth is, for some of the supports he has received over the years, the only reason he has received them is this blog and the fear some feel that I might sue the state of North Dakota over the lack of services and support. So where is this wonderful graphic? Right here: For those who can’t see the graphic because you are using a screen reader or something,

Fifteen Days Post FASD Camp

So fifteen days ago David had the opportunity to attend FASD Camp. Summer camp. The day I dropped him off, I snapped a selfie of the two of us. Minutes after snapping this photo, he was off meeting new friends with the same disability that he has. The Disability Yes. My son has a disability. You can’t tell it by looking at him. That disability is Fetal Alcohol Spectrum Disorder (FASD). It is not the only one he has, but it is the focus of this post. We learned last winter of this camp called fasdcamp. It is just for kids with FASD. Thus began the process of applying for camp which began before he came home from care in January. In mid-April, we learned that he had been accepted. This was after a rather lengthy telephone conversation with the camp medical director about David’s condition. See, they want to