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Author Archives: carl

>Pain and then some…

>I am in so much pain tonight.  My legs are stiff and ache from being in the car all day.  I got too much light today.  Now my knees are swollen and very stiff, to the point where bending them leads to a lot of pain.   Not sure I can do PT tomorrow. 🙁 I hate being like this. I hate pain. I don’t like feeling worthless.  ok. pity party is over. Thanks for listening. Tweet #fighting4answrs

>Staffing session for our Child

>Well, today we had staffing for our son.  As I have posted before he is in a residential facility right now learning behavior management among other things.  The staffing includes such people as myself, the mentor coordinator, the program coordinator, the therapist, psychologist, nurse, partnerships care coordinator, family inclusion therapist, our son, and today we included the principal from he school. We also invited our advocate from Protection and Advocacy. Surprisingly our son and the principal didn’t have any issues.  Which is good.  During the course of the staffing, which lasts about an hour, everyone present gets input into our sons care.  Including our son.  He didn’t say a whole lot. He talked about responsibility, not pushing or provoking others, and being respectful. Our son recognizes and indicates that he is frustrated with himself when he misbehaves.  He apparently doesn’t like the person he becomes when he is having a

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>Support

>I am a member of an online support system for people with fibromyalgia.  It is incredible to be able to communicate with other people who have this condition.  I wish that there was one for Lupus.  The only thing that is not good is that I am the only man.  the other members and I share humor, and talk about everything.  I think that it has helped. I started physical therapy this week.  what school do you have to go to be a sadist?  I think therapists must go there too. Tweet #fighting4answrs

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