Very positive outcomes today from the team at the cleft palette clinic. Speech is highly intelligible. Hearing loss on the left side, may need tube in that side but will know more later this Spring. He grew 14 inches though. Won’t be long before he is taller than I am. David, our youngest has been fabulous today. No issues, no outbursts, very positive behavior. So proud of him. Tweet #fighting4answrs
Today our goal is to attend the annual cleft palette clinic for our oldest boy. Hard to believe we have been coming to these for 14 years already. They keep a growth chart and photo record, he has grown 14 inches in the past year. No wonder we can’t keep him in pants. Seeing the photo record is amazing as well. The clinic takes about 2 hours for the older kids. So far we have been here for 45 minutes. No complaints. More later, they are calling us again. Tweet #fighting4answrs
This morning started out fabulous. David was well rested, I was fairly well rested, and we were up on time to see everyone else off to school. I first give David quiet time in the morning, gives him a chance to get himself in sync with the day. This morning was no different, after a quick breakfast of Cinnamon Life Cereal, he got his meds and went to his quiet space. Later in the morning, I heard some noises that told me fairly quickly he was doing something he wasn’t supposed to be doing. So I stalked quietly into the area near his quiet space, and he quick jumped up, shoved what he was doing under a blanket and came out and asked me wahtI was doing. I explained that I thought he was doing something that was off-limits. He denied it, as is typical of any ten year old