Tag Archives: autism awareness

Frustrated with Frustrating PRTF’s and Frustration with Bureaucracy

This is really a two part post. ————— First, David was accepted at the new facility.  Which is pretty good, as we haven’t done anything other than sign a release of diagnostic records for them to give a “tentative approval”.    There are a lot of hoops to jump through in order to be able to place David at an out of state facility.  First, he needs three denials from in-state facilities.  Second, an Interstate Compact has to be established.  Third, Medicaid has to approve it. These three items can’t be accomplished until we submit something called a Universal Application which has to be updated at least yearly. The facility where he currently resides wants to bump David’s staffing, likely there are thinking that this will allow David to be placed faster.  Thankfully, most of the team isn’t ready for that to happen. The thing is… I asked the social worker

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Autism Awareness: Moving Beyond Awareness Into Action and Promise

Autism Awareness Month Almost Over, Now What? I have this idea. It goes something like this: we participate in an awareness campaign (like this one for Autism Awareness) and it gives us a sense of purpose, a sense of healing, and even, maybe, a sense of achievement — we did something. There’s something inherent in any kind of cause marketing (just another fancy name for trying to convince you to care about a cause instead of a product) that is almost counterproductive to the purpose and potential it represents. Inaction. There. I said it. The sad fact of the matter is, that the end of this month will come and go, and our lives will be very much the same. For being a family mired in the ‘having of autism’ we won’t suddenly be miraculously understood by that clerk at the store, and we will still feel isolated and alone

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