Fighting for Answers | Author Archives | Page 91David's Father, Author at Fighting for Answers

lies, little ones for now, but lies none the less

he likes to lie. not like taking a nap, but like story telling. if a lie has a hint of truth, it is that much more believable. So I call him out on each one. Get that heavy deep body sigh. So I ask him, do you know what happens when you lie? His response? “But I am not lying.” Yet, I can prove that he is. Every time he lies. What does he gain by lying? I finally had to tell him that if he continues to lie, we will never be able to trust him. He doesn’t understand why we don’t trust him. How can you trust someone who will look you in the eye and flat out lie? If nothing else, maybe he can get work as a storyteller. Tweet #fighting4answrs

Medicaid frustrations again.

Why is it that Medicaid knows what is best for a child? More so than the doctors, psychiatrists and therapists that are treating said child? I am tired of Medicaid telling me what is best for my son. BCBS is his primary insurance, Medicaid is secondary. Medicaid refuses to pay for 2 doses a day of a particular medication. So now, not only is it deemed best for him to be at home, we don’t have access to the medications needed to ensure that he is stable. We have enough of the medication to file an appeal, but what do those people do who don’t know how to appeal, or that they even can? Thankfully we have a pharmacy that understands finances are limited. Dear readers, please know that if you, your doctor, or pharmacist disagree with a medicaid decision, you can appeal the decision. Tweet #fighting4answrs

So Far, So Good, Now …

It is too early to tell if all of my worry from the last two weeks was for not. However, so far so good. It is an adjustment for sure, but no less an adjustment for him as the rest of the family. I am used to having the house to myself all day long, and now I have this teenager running around. Today we had a second IEP meeting about him. On Monday he will start half days in a day program in a nearby city. School will transport him to the facility, I will pick him up. This is two fold, one, they can provide the class size and supports that he needs. In the afternoon, I can work with therapists for various appointments. We won’t be able to recreate every aspect of residential care, but we ought to be able to create some of it. One thing