When your child requires PRTF level care, you hope that the facility he enters is full of compassionate individuals who want the best interest of your child. You hope that your child will find long term care if that is what is necessary. Today we were notified that our son received the third denial for in-state care. This means that now we are looking at out of state facilities to provide “the same level” of care as he is getting now. This is being done under the guise of “we just don’t think that we can meet his needs anymore”. Last Spring, when we had a meeting with the school, and the teaching staff told us that David needed care at a different level, the treatment staff told us that they weren’t ready to give up. Then, two months later, they did just that. As we neared the one year
I don’t like to wax politically on my blog. To me there is enough of that going around that one more opinion really isn’t going to matter. That changed today when I took my wife to the dentist. See, she is covered by an employer plan at the school where she teaches. One that she pays a portion of. This year, we decided to add myself as well as the kids to the plan. We qualify for Medicaid, but that has a “Recipient Liability” of 2500 a month. “Recipient Liability” is another name for deductible. We pay the first 2500 dollars of our medical expenses out of pocket each month when we are on Medicaid for each member of the family except David. Now, in the event of a hospitalization, this would be a savior for us. (For info about why David is exempt see the end of the post.)
Today, we had a staffing for David. These occur monthly. Participants include social workers, therapists, and parents. By all accounts, he is doing well. For the most part he is stable. Residence staff reported that since the seizure on Friday, David has been rather subdued. He seems to be nervous or upset about what happened. He doesn’t spend a lot of time talking about it. Medical reported that David’s seizure wasn’t caused directly by the Wellbutrin. Wellbutrin simply lowered his threshold so that an underlying condition is more prominent. That said, David will be scheduled for testing to see what level of seizures he has been having. In hindsight, he has exhibited some aspects of seizures. There are times in the past where teachers have noticed that David has “vacated” or gotten a look in his eye. Could this have been an ongoing sign of seizure activity? We don’t know.