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my friend – Stan

My friend Stan could be difficult at times. Never was there a more self-deprecating man. On the other hand, his complete and utter faith that he would be greeted by Our Lord and Savior was refreshing, and I admit at first, off-putting. We had a disagreement a few weeks ago over his job. He was obligated to report what he thought was a harmful environment for a student. But didn’t want to make the call. I told him that I wouldn’t speak to him again if he didn’t hold true to his ethics. He was afraid he would lose a friend. In the end, he made the call. He learned that the family in question was already doing everything possible for their kids. He did his job and held true to his ethics. The family he had to report was mine. I still consider him a friend. Stan passed away

When Real Life Isn’t Pretty – 30 Days of Autism Awareness

Reacting to Opinions About Our Real World – A Different Kind of Autism Awareness The first moment I knew our real world wasn’t the one I was promised was moments after delivery, when a nurse whispered, just loud enough for me to hear, that there was something wrong with my baby’s eyes. A month would go by before Bobby was diagnosed with the rare disorder we have become intimate with, Axenfeld-Rieger Syndrome. He was mostly blind throughout his first year of life, before intensive treatments–eye drops that he hated–made a difference. Our little guy had eyes that were almost milky white, the blue eyes of a newborn barely visible beneath a spider webbing of white that had the doctors, and the specialists, perplexed. Autism didn’t enter our world for another three years, and wasn’t whispered as a real diagnosis for another couple years after that. And yet, as one boy

Sometimes…You Shouldn’t Say a Word – Health Activist Writer’s Month

As Special Needs Parents, We Sometimes Write Before we Think Special Needs Parents aren’t immune from this human failing, after all. We all are a bit guilty of sometimes writing something in anger, writing something without considering how deeply we feel about what we say. When emotions are high, which is often is when talking about our children with special needs, we lash out to hurt before being hurt. The problem is that when we do that we are giving up a chance to think critically about life in a way that can make a difference. I can see you shaking your head out there. So let me explain … Another Special Needs Parent’s Opinion isn’t my Own I wanted to write about this yesterday. I was going to write up a rant of a post and slap my autism awareness month label on it and proudly declare my right