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One Week Post Discharge

One Week Post Discharge. Time flies.  David was discharged on Jan 12 from care.  He was discharged to home, which in the books of the facility, is a successful discharge.  In truth he was brought home for other reasons, chief among them? He deserves the opportunity to live in the community.  With supports, without supports.  Right now, his life exists without supports.  He has access to the resource room at the high school, otherwise, right now, he has no support beyond the therapy stuff we have set up for him.  Some of which he can’t begin to access for three months because of wait listing. While I believe he needs support, we are letting him try to live a life outside a facility. We have to keep reminding ourselves, despite what the facility believes, he can’t be cured, his FASD can’t be cured with talk therapy.  While his chronological age

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Loving a teen with FASD – reblog post

https://w.soundcloud.com/player/?url=https%3A%2F%2Fapi.soundcloud.com%2Ftracks%2F386515817&color=%23ff5500&%3Bauto_play=false&%3Bhide_related=false&%3Bshow_comments=true&%3Bshow_user=true&%3Bshow_reposts=false&%3Bshow_teaser=true&%3Bvisual=true A phone charging cord was whipped in my direction. Fast. Furious. More powerful than I remember. Will he always have these cycles? I face my own fear and I recognise we are not in crisis now. We had a blip. We will have blips. But we’re okay. via No Going Back — FASD: Learning with Hope Tweet #fighting4answrs

Coming Home – a letter for my son

David, In less than 24 hours, you will be coming home. You will have completed yet another stay in a care facility.  As much as the facility would have us believe differently, there is no cure for your condition.  I explained it once to you, maybe you remember? I also told you there is no cure for the condition you were born with. You have something called Fetal Alcohol Syndrome.  It is within a group of disorder known as Fetal Alcohol Spectrum Disorders.  Like Autism, there are wide variations in the symptoms that people with this condition have.  This is why we see so many specialists. Why do you have this? When your birth mom was pregnant with you, she did a lot of things that were not healthy for you, these included using drugs and alcohol.  As much as I want to say that she is evil, I can’t. 

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