Author Archives: carl

forty hours and it’s affect on my health

Well, being awake for 40 of the last 48 hours is taking a definite toll on my body. See, I have systemic lupus, fibromyalgia, hypothyroidism and they are testing to rule out MS and Parkinson’s Disease. Because David has taken it upon himself to throw up his meds more, everyday since Friday afternoon actually, it has been a struggle. My knees ache so much that I had to take my strongest pain meds to see if I can sleep tonight.  The trouble with that is if David wakes, I won’t know it. I am also developing a deep chest cold, which is the result of my Lupus.  How do I know?  After 13 years, you can begin to tell when the Lupus is active, so that means an increase in my steroids. Tomorrow we are meeting with the psych team, so hopefully we can explore some hospitalization.  During his last

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a new issue

Here is one we haven’t faced yet.  David has started stealing a cordless phone in the house and making long distance calls on it.  Lucky enough most of the calls have been to his Aunt.  How long before he starts calling random numbers? So now we need to look into locking up our phones at night. Tweet #fighting4answrs

good conversations about Autism and Mental Health

I posted a write up recently about autism and sociopath.  There followed an excellent conversation on twitter about my post and the topic in general.  This is exactly the kind of thing that needs to happen in our communities.  Doesn’t matter what the special need is, be it a mental health issue, a physical issue, or a developmental issue, without conversation, no changes will occur. I feel it necessary to qualify these posts.  Unless specifically stated otherwise, these posts apply to my unique situation.  Our situation is similar yet different to what the Gorski’s over at Lost and Tired are going through.  Does it make their experience any less potent or valuable?  No.  It just makes things unique.  Same might be said for the Moody’s over at Kat’s Cafe. What they are going through with their school district is similar to what the Gorski’s and I are going through.  Is

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