Second Guesses It’s been a long day, and while my body is tired, I can’t turn off my brain. See, This is the second time in a month we have had David’s time in the facility extended. While we both knew it was a possibility, I can’t help but feel that he is being let down. I mean, it’s a huge victory for him to continue where he is successful until we can get supports in place for him to come out of the facility, but it’s not easy. In hindsight, I really don’t think David will see it as a victory, at least not until many years down the road. But it is a victory for him. For his care. It’s not easy to tell your child, “You can’t come home yet.” Even if they know and claim to understand the why of it. David understands that in order
David is on a track to potential discharge in March of 2016. I won’t go in to the ins and outs of his program. I don’t necessarily agree with discharge at this point. David has been having difficulties the last two days. And a couple of times over the last month. If his care and issues aren’t properly documented, my fear is that he will not get the care that he needs. His behaviors are escalating. Please, don’t do him any favors by not documenting his care. If he does something, please document it. It is the only way to ensure that he is getting the care he needs. We saw this in his last placement where things weren’t documented in the lodge/cottage/residence. He ended up being discharged against doctors orders because Medicaid said he needed to go home since he wasn’t making any progress and was not regressing either.
David spent the night with his respite family. It is so peaceful here right now. No fights, no thefts, no arguments. Should I feel guilty that I am enjoying the quiet? Tweet #fighting4answrs