So a few weeks ago I wrote about our struggle to get medication management for David’s psych medications. Today we did intake at Sanford Behavioral Health Bismarck. Medication success! and Medication disappointment. See, they are taking him on as a patient, but since we missed his appointment in May, he can’t be scheduled to see someone to manage his medications, and prescribe them, until November at the earliest. I asked point blank, “what is he supposed to do about medications until then?” “You can speak with his primary doctor and see if she will prescribe them for you.” What if she won’t prescribe them? Tough luck. Well, I guess we could put him in psych when his medications wear off and he runs out of them. then they will pretty much have to prescribe them. But why should it come to that?
I went to the pharmacy to pick up his medication and what do I find? nothing. So I said, “he is on an auto-fill plan how can this be?” It’s not logical The tech calls the pharmacist who explains it to me. “We call the doctor two weeks before the refill is due. “We call the doctor one week before the refill is due.” “We call the doctor three days before the refill is due.” “We call the doctor daily until the refill order arrives.” Now, normally, the pharmacist says, “we call once and it’s filled. We have been doing this with your son’s medications since March. This month we have received no response.” Moving out of state provided care I had already scheduled an appointment with his primary to get a psychological evaluation referral. So I asked her, can you refer us to a
So fifteen days ago David had the opportunity to attend FASD Camp. Summer camp. The day I dropped him off, I snapped a selfie of the two of us. Minutes after snapping this photo, he was off meeting new friends with the same disability that he has. The Disability Yes. My son has a disability. You can’t tell it by looking at him. That disability is Fetal Alcohol Spectrum Disorder (FASD). It is not the only one he has, but it is the focus of this post. We learned last winter of this camp called fasdcamp. It is just for kids with FASD. Thus began the process of applying for camp which began before he came home from care in January. In mid-April, we learned that he had been accepted. This was after a rather lengthy telephone conversation with the camp medical director about David’s condition. See, they want to