The appeal to Medicaid to further fund services has been denied. As a result, I will be picking up David from the facility on Monday. We then come home to begin a new chapter in our lives as a family. We had an IEP meeting for him this morning. Short term he will be homebound working on school materials supplied by the district. Long term we are applying to a day program for him. During the IEP meeting we got a look into the life of David. Minimum five hours a week of intensive group therapy. Weekly individual therapy. Weekly family therapy. He is in a self-contained classroom for all but two classes. Those two classes are Art and Physical Education. His therapist makes regularly daily contact throughout each day to ensure that David knows she is checking on how he is doing. He has 24×7 staff support of some
Living a life filled with fear does things to the body. I have a number of chronic health issues, and the stress from this is exacerbating those health issues. Please, if you are reading this then you have either an interest in the topic, or are experiencing it yourself. Remember these key things. It’s not your fault. The way that you feel, about yourself and your child is perfectly normal. Seek help. Talk to a therapist, a doctor, your priest or rabbi, heck, talk to Harvey the Rabbit if it helps. But talk to someone, don’t keep stuffing this. It won’t help anyone long term. Know and understand that you are not alone. There are a number of support groups both via facebook and on the Internet. If you can’t find one on your own send us a comment and we will see if we can help you find something.
What is it like to live in fear? Having never lived in a war zone, or been active in a war zone, I can’t say that our experience compares to that. What I can say is this. Living day to day on edge constantly because you don’t know from one minute to the next what your child is going to do, whether or not they are going to explode in anger, assault you, throw themselves at the wall, steal things, or try to kill the family pets will take a huge toll on you. If he is angry enough to carve on himself, to then reach into that wound and make the wound larger by tearing his own flesh with his own hands, what is he capable of doing to someone else? When a child can easily go 48 hours without sleep, it takes a toll. When you have chronic