When your child requires PRTF level care, you hope that the facility he enters is full of compassionate individuals who want the best interest of your child. You hope that your child will find long term care if that is what is necessary. Today we were notified that our son received the third denial for in-state care. This means that now we are looking at out of state facilities to provide “the same level” of care as he is getting now. This is being done under the guise of “we just don’t think that we can meet his needs anymore”. Last Spring, when we had a meeting with the school, and the teaching staff told us that David needed care at a different level, the treatment staff told us that they weren’t ready to give up. Then, two months later, they did just that. As we neared the one year
Today, we had a staffing for David. These occur monthly. Participants include social workers, therapists, and parents. By all accounts, he is doing well. For the most part he is stable. Residence staff reported that since the seizure on Friday, David has been rather subdued. He seems to be nervous or upset about what happened. He doesn’t spend a lot of time talking about it. Medical reported that David’s seizure wasn’t caused directly by the Wellbutrin. Wellbutrin simply lowered his threshold so that an underlying condition is more prominent. That said, David will be scheduled for testing to see what level of seizures he has been having. In hindsight, he has exhibited some aspects of seizures. There are times in the past where teachers have noticed that David has “vacated” or gotten a look in his eye. Could this have been an ongoing sign of seizure activity? We don’t know.
that says “your son has had a seizure, and is on the the way to the emergency room via ambulance.” It was nearly two hours before I noticed the message on my cell phone, which tells me a number of things. They didn’t attempt all of the communications methods that we listed in the paperwork for his admission. They didn’t call both home and cell phone for dad. UPDATE they did leave a message on our home phone. They didn’t call both work and cell phone for mom. They didn’t call the third party emergency contact. They didn’t email me until after I had sent a message arranging for our Sunday visit. And by this time, it was more of an “Don’t know if you got my message or not, but David had a seizure today around 1:45…” In the end, preliminary indications are that he had an allergic reaction