Attention grabber isn’t it? As a stay at home dad of five kids, or which three have a special need of some kind, I am at the forefront of all activities in our home. As it should be. With our youngest son David and his increasing need for near constant attention, the pace is increasing. He requires more and more energy to keep up with him. As an individual with more than one chronic illness, my health is finite. The last two months have definitely put a stress on my health. This week, I left home on Wednesday for two days in Denver doing a Title V Block Grant Review. More about that can be found here. Even though it has only been two days, I can say unequivocally that my body hurts less today than it did two days ago. I like to blame the altitude. I remember in
We met with David’s psych team today. We are doing everything right. They are surprised that it has taken us this long to seek placement for him. We talked at length about the issue with David spitting up his meds, and were told that it is all about David wanting control. Has nothing to do with him not liking the taste of his meds. As much as I like this psychiatrist, this isn’t anything that we didn’t already know. So we are going to keep on doing what we have been doing until a bed opens up at the residential facility. He can be there for as many as 7 years. Another topic was our discussion of David’s behavior and its affect on my health. Yeah, not a good conversation to have. Related articles Melatonin and anti-psychotics (whynotfathers.com) forty hours and it’s affect on my health (whynotfathers.com) another night done.
Well, being awake for 40 of the last 48 hours is taking a definite toll on my body. See, I have systemic lupus, fibromyalgia, hypothyroidism and they are testing to rule out MS and Parkinson’s Disease. Because David has taken it upon himself to throw up his meds more, everyday since Friday afternoon actually, it has been a struggle. My knees ache so much that I had to take my strongest pain meds to see if I can sleep tonight. The trouble with that is if David wakes, I won’t know it. I am also developing a deep chest cold, which is the result of my Lupus. How do I know? After 13 years, you can begin to tell when the Lupus is active, so that means an increase in my steroids. Tomorrow we are meeting with the psych team, so hopefully we can explore some hospitalization. During his last