Well, being awake for 40 of the last 48 hours is taking a definite toll on my body.
See, I have systemic lupus, fibromyalgia, hypothyroidism and they are testing to rule out MS and Parkinson’s Disease.
Because David has taken it upon himself to throw up his meds more, everyday since Friday afternoon actually, it has been a struggle.
My knees ache so much that I had to take my strongest pain meds to see if I can sleep tonight. The trouble with that is if David wakes, I won’t know it. I am also developing a deep chest cold, which is the result of my Lupus. How do I know? After 13 years, you can begin to tell when the Lupus is active, so that means an increase in my steroids.
Tomorrow we are meeting with the psych team, so hopefully we can explore some hospitalization. During his last hospital stay, we changed most of his meds to liquids, in an effort to get him to keep them in his body.
On Wednesday I am in Denver for 3 days. I promise to try not to feel guilty for the welcome break from David. Will I succeed? Since I miss him when he isn’t around, I am not sure.
- Understanding Lupus Flares (everydayhealth.com)
- Health concerns – a new slant – Lupus and Fibromyalgia (whynotfathers.com)
- Lupus Is Controlling My Life (e-prescribe.biz)
- beyond tired (thedisillusionment.com)