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Category Archives: autism spectrum disorders

Encouragement

What is it like to live in fear? Having never lived in a war zone, or been active in a war zone, I can’t say that our experience compares to that. What I can say is this. Living day to day on edge constantly because you don’t know from one minute to the next what your child is going to do, whether or not they are going to explode in anger, assault you, throw themselves at the wall, steal things, or try to kill the family pets will take a huge toll on you.  If he is angry enough to carve on himself, to then reach into that wound and make the wound larger by tearing his own flesh with his own hands, what is he capable of doing to someone else? When a child can easily go 48 hours without sleep, it takes a toll. When you have chronic

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Tags: @mylivingpower, #getyourjoyback, autism, God, hope, joy, prayer, prtf ·

Looking back

We fought so hard to keep from placing David in a facility.  Now, we are fighting to keep him there. I never would have thought this day would come.  Last year at this time, we were upset because we had to move him to a new facility. This year I would love to know that he can stay in a facility. This isn’t me admitting defeat.  This is me begging for help. This is me admitting that we are beyond powerless to do this ourselves. Tomorrow, we start prep with the school for his return. Tomorrow, we start prep for his return home. Tomorrow, we appeal. Tomorrow, the fight begins anew. Wish us luck.  Wish David luck.  After all, we only want the best for him.   Tweet #fighting4answrs

Tags: autism, bipolar, discharge, prtf ·

Happy One Year Placement Anniversary David

Ironically, the day after we receive notice of denial of coverage of services for our son, is the anniversary of his placement at the current facility.  It has been one year since we placed David in a facility 500 miles from home. Today, I am struggling with the stress of not knowing where we are at with my youngest son’s mental health treatment.  The denial of continued care is weighing heavily on my mind, and it will be Tuesday before I can file any appeals. He deserves better than this from the system that is responsible in part for his care.  When we adopted him, he was ordered by the court to have complete state sponsored medical coverage until he turns 18.  This is Medicaid. It isn’t safe for anyone for him to come home.  Even the staff that works with him day to day has said that.  A month

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Tags: #getyourjoyback, ACA, adoption, affordable care act, ASD, autism, bi-polar, bipolar, Medicaid ·

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