Author Archives: carl

sleep talking

David talks in his sleep. We carry on regular conversations every night.  Mostly because I have learned that if I don’t respond when he is talking, he will wake up and it takes forever to get him to go back to sleep. Tonight, he wanted to know how to describe the apple products.  Since I don’t know if he was talking about fruit or a computer, I told him to just describe it the best way he could.  So he started describing a red Apple Macbook.  Talking about how pretty it was. Times like this just overwhelm me with love for him. He is so cute. And then he wakes up and another person comes out to play. Tweet #fighting4answrs

Basic Service Levels – Universal Application

Our state has something called a “Universal Application.”  This is the application that anyone who requires care in the state system would use to access that care.  We filled one out last year for residential care for David, and another one again this year for his upcoming placement. Now.  That application collects a lot of information. How difficult would it be to include basic information like hospital admission dates in the data that is collected? For that matter, how difficult would it be to make it an electronic form that I could fill out and save on my computer? The reason that I am, for lack of a better word, grumpy about service levels is that the care facility David is going into could have asked me for all of the extra information that they needed a week ago when they called to let me know that he had a

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disappointed in service levels

I sleep during the day, because I stay up all night long with my son. This morning, just as I was getting into a good sleep, I received a call from the facility where David will eventually be a resident.  They need a list of hospital stays for him going back two years. Evidently it is too much work for them to go through his medical records and dig up the information for themselves.  So I told them… “David doesn’t sleep at night.” “As a result, I stay up all night with him.” “You are cutting into my night time right now.” “If you had told me yesterday or even last week that you needed this information, I wouldn’t be upset.” So I sent them an email with the information that they need.  Later in the afternoon I called and asked if the bed was indeed going to be available. 

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