The answer should be yes. Not "how can I get my loved one help?"

Monthly Archives: January 2015

Medicaid frustrations again.

Why is it that Medicaid knows what is best for a child?  More so than the doctors, psychiatrists and therapists that are treating said child?

I am tired of Medicaid telling me what is best for my son.

BCBS is his primary insurance, Medicaid is secondary.  Medicaid refuses to pay for 2 doses a day of a particular medication.

So now, not only is it deemed best for him to be at home, we don’t have access to the medications needed to ensure that he is stable.

We have enough of the medication to file an appeal, but what do those people do who don’t know how to appeal, or that they even can?

Thankfully we have a pharmacy that understands finances are limited.

Dear readers, please know that if you, your doctor, or pharmacist disagree with a medicaid decision, you can appeal the decision.

So Far, So Good, Now …

It is too early to tell if all of my worry from the last two weeks was for not.

However, so far so good.  It is an adjustment for sure, but no less an adjustment for him as the rest of the family.

I am used to having the house to myself all day long, and now I have this teenager running around.

Today we had a second IEP meeting about him.  On Monday he will start half days in a day program in a nearby city.  School will transport him to the facility, I will pick him up.

This is two fold, one, they can provide the class size and supports that he needs.  In the afternoon, I can work with therapists for various appointments.  We won’t be able to recreate every aspect of residential care, but we ought to be able to create some of it.

One thing I have to remind myself, is that he is a 13 year old boy.

A feeling of peace.

Today I woke up, with a spring in my step.

I realized something as I left on the trek to get David.  I am at peace.

I felt an incredible sense of peace when I realized that.  It was inspiring.  As I felt this, I was crossing the dam near our home.  Headed south west into Montana.

I don’t know how to put it into words.  But it was like all of a sudden, the troubles of the past week were lifted from my shoulders.

Does that mean I think everything is going to be golden with David’s return home?

Not on your life.  But I also realize that there are some things that are outside of our control.  Trying to control David is like trying to figure out how a tornado works.

You have good intentions, but very little chance of success.  An early warning system is ever elusive.

I think that I owe this sense of peace to someone else.  First of course, I have been doing a lot f praying, and we have had a lot of prayers from many, many, many people. So I thank God.  For helping me find peace through Him. Get Your Joy Back

The other thing is this book I had the good fortune to be part of the pre-launch party for.  “Get Your Joy Back”  by Laurie Wallin.  This book has helped me examine many facets of my life as the parent of a special needs child.  I fear that I have been remiss however, in not sharing it with my bride.  That will change, as I am going to get her a copy all her own.

Why?

Because my copy has been highlighted to no end with those portions of the book that struck me as important.  I can’t say what my bride will find important in this book, so she gets her own copy.

So thank you everyone, for your thoughts, your guidance, and most of all, your prayers.

Carl

P.S.  If you click the image above, you can enter a give-away through the 29th of January 2015.