David was in crisis. His manic moods are nothing new to us. They are new to the facility where he lives now. Today, among other things, they called and talked about an allegation that David made against a staff. David has learned that he can file grievances and complaints against the staff at the facility. While it is great that the residents have the ability to do that, I wonder… See when David is in a mood swing, he can become very violent, lashing out at anything and anyone. We know first hand just how strong his little body can be when he is in a mood swing. He can get out of most holds. There were times when I had to lay my body across his to get him to stop hurting either himself or someone else. I am more than 4 times his body weight. I applaud the
Just received a call from the new facility. I could hear David in the background. Full breakdown screaming. Evidently he is in crisis right now. Have to find out how they define crisis, but it sounds like one of the other kids in the facility was having a rough time, and David was feeding off that boy’s behavior. So as a courtesy the staff called to let me know about it, and what their response was going to be. Before the staff could explain it to me, the call ended. When they called back, it was explained that David did something to the phone. At any rate, by the time the call ended, David was in time out, and well on his way to being restrained. I told the staff to call anytime they needed to do so. Imagine what he will be like when they start changing his meds.
We had our first conference call with the team from the new facility yesterday. A full team is involved. Care team, medical team, education, and equally important, the family. Once we got through the initial introductions, focus was directly on medication. Like mom and I, they believe that the least amount of medication necessary to do the job is the best way to go. However… While I know medication is not a cure, I also know what David is like when the meds aren’t enough to maintain even the slightest level of stability. At 12, he has been on adult doses for most of his life of all of these medications. It is something that we have struggled with since we started with medication when David was 4. Both David’s care coordinator and I warned them that, while we are in favor of fewer meds, they need to be aware