Author Archives: carl

>a WOW moment

>Met a new psychiatrist for M today. She asked half a dozen questions, then said…“He has this disorder, this disorder and this disorder. “ Then she said, “has he had this test?” no. “This test?” no. “This test?” no. “Then,” she asked, “how come he has to take all these meds.?” So beginning Monday we are starting testing. First test EKG. Second test EEG, Third test Genetic, Fourth test Psychological. She said “we might add a couple of diagnosis, but then we can start treating things in a fashion that makes sense, and provides the best CHANCE for success.” Rather than just throwing different meds at him, we may actually get to the root of the problem, and begin treating that. She also indicated that if we treat the bipolar first, we can lessen some of the other disorders and begin treating them. Some of the disorders have overlapping indicators,

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>Respite Care

>We talked to the doc at length today and he talked about respite care. We were denied respite care last fall because we haven’t spent enough medicaid dollars. In order to qualify we have to spend more than 15,000 dollars in medicaid dollars. Since we are trying to keep M at home as much as possible, we don’t spend the medicaid dollars. Doc thinks that we may qualify this year. So keeping our fingers crossed. Also hoping to hear about our application for SSI. Since this is our first application I expect to get denied. Tweet #fighting4answrs

>Sleep time

>M apologized to someone in his sleep. 🙂 He and I sleep in the same room. So that we can keep track of what he is doing. So I wake up when he moves around, most of the time. Such a sweet heart. Wish that this part of him could take over the awake part of his life. Ah well, he wouldn’t be the little boy we love without those day time qualities no matter how frustrating they can be. I can hear T giggling at something on his tv. T if I haven’t said, has Autism. He is high functioning, but lacks social skills, and filters. He is my mini-me. We spent the day together, and he slept for about half of it, while we were in the car. (fell asleep reading a book about the Wit and Wisdom of Abraham Lincoln, which I know he has read at

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